Baby Sitters & Caregivers Importance to You and Your Child
There are about 30,000 children in the USA with epilepsy with dedicated parents that cannot always be with them. The statistics on how many of those children are having uncontrolled seizures is not known, but I don’t see a proliferation of seizure-free children roaming the streets! How many parents that represents for all those children is unknown.
Women are often divorced and left with their child because their callous husband couldn’t understand or tolerate the inconsistencies of epilepsy. If a mother raises a child alone, which is a monumental undertaking, combined with a chronic disorder is a rough road. This parent is equated to a balance scale collapsing from carrying too much weight. Divorces or parental emotional breakdowns don’t have to be the reality if a parent builds a “safety net”. The name of that “net” is a Baby sitter or Caretaker. Baby sitter is a name for babies to 10 years old and a Caregiver from 11 and beyond.
It just isn’t feasible to bring your child everywhere! Aside from the fact that a parent cannot be with their child all the time, there’s the need for giving the parent “time off”. Depending on how frequent and severe the seizures, a child’s epilepsy and all its implications can be draining. “Time off” for parents is critical. Strength is necessary to be the best for your child. Being emotionally drained makes a parent incapable of giving the degree of attention their child needs most.
The temporary surrogate parent needs to realize that in regards to seizures, preventing injury is key.
Sitter’s Gospel and Parent’s Safeguard
1. Child’s full name (for medical records if an emergency arose).
2. If seizures are frequent and are of a violent nature, know family’s hospital name and pertinent insurance information.
3. What type or types of seizure(s) and how to recognize each.
4. Are warnings before the siezure typical? Describe them. Can anything be done to abort or minimize the seizure? Awareness is important regarding this as it can even minimize its effects.
5. What happens during the seizure? Is there something the parent has found that helps ease the severity?
6. What shape is the child in after a seizure? What kind of postictal (recovery) period does the child go through? Is laying down afterwards necessary? Is a doctor’s call warranted? Does the child get emotionally moody? How is this handled?