On July 24th, 2015 I responded to a poll that asked if there was still a stigma related to epilepsy. I said YES!
Also, in reply to the poll I replied:
I have had epilepsy, catamenial epilepsy for almost 41 years. I’ve been intractable, I am photosensitive but am on medication to control it.
It took a long, long time to find the right pills.
I have been overdosed, misdiagnosed, thrown around like a “number on a doctor’s file”, and believe me, even doctor’s don’t know the meaning of the word “seizure”!
You never know until you experience one.
I used to experience up to 300 simple partials per day.
I have complex partial and simple, but they feel the same exact way.
I’ve used biofeedback therapy successfully, aromatherapy, especially jasmine, and a field called psychoneuroimmunology.
I studied the books of Joan Borysenko, who was my friend, writing about this.She gave me an author’s copy of her book “A Pocketful of Miracles”.
I have helped others with this disorder as the President, CEO and founder of The Epilepsy Connection. I made no money but I saved lives and helped others. The more I helped others the better I would feel. The healthier I would become.
I’m on a new drug now for 1 week called Keppra, that is working well.
I am in the middle of a disgusting divorce battle that unfortunately my ex-husband didn’t think enough of me to tell his company that he divorced me! I used to …Continue Reading